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Privacy rights of human research participants in South Africa must be taken seriously

D W Thaldar, B Townsend, C Staunton, R Adams, M Botes, E S Dove, L Horn, M Labuschaigne, G Loots, S Mahomed, A Olckers, M S Pepper, A Pope, M Ramsay, N Ni Loideain, J de Vries

Abstract


Letter by Thaldar and Townsend, following an article by the same authors (Thaldar D, Townsend B. Genomic research and privacy: A response to Staunton et al. S Afr Med J 2020;110(3):172-174. https://doi.org/10.7196/SAMJ.2020.v110i3.14431) and both commenting on an article by Staunton et al. (Staunton C, Adams R, Botes M, et al. Safeguarding the future of genomic research in South Africa: Broad consent and the Protection of Personal Information Act No. 4 of 2013. S Afr Med J 2019;109(7):468-470. https://doi.org/10.7196/SAMJ.2019.v109i7.14148); and response to article and letter by Staunton et al.

Authors' affiliations

D W Thaldar, School of Law, University of KwaZulu-Natal, Durban, South Africa

B Townsend, School of Law, University of KwaZulu-Natal, Durban, South Africa

C Staunton, School of Law, Middlesex University, UK; Institute for Biomedicine, Eurac Research, Italy

R Adams, Human Sciences Research Council, Pretoria, South Africa; Information Law and Policy Centre, Institute of Advanced Legal Studies, University of London, UK

M Botes, Biolawgic (Pty) Ltd, Johannesburg, South Africa

E S Dove, School of Law, University of Edinburgh, Scotland, UK

L Horn, Office of Research Integrity, University of Cape Town, South Africa

M Labuschaigne, Department of Jurisprudence, School of Law, University of South Africa, Pretoria, South Africa

G Loots, Department of Science and Technology, Pretoria, South Africa

S Mahomed, Department of Jurisprudence, School of Law, University of South Africa, Pretoria, South Africa

A Olckers, DNAbiotec (Pty) Ltd, Pretoria, South Africa

M S Pepper, Department of Immunology and Institute for Cellular and Molecular Medicine, Faculty of Health Sciences, University of Pretoria, South Africa

A Pope, Department of Private Law, Faculty of Law, University of Cape Town, South Africa

M Ramsay, Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa

N Ni Loideain, Information Law and Policy Centre, Institute of Advanced Legal Studies, University of London, UK

J de Vries, Department of Medicine, Faculty of Health Sciences, University of Cape Town, South Africa

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Cite this article

South African Medical Journal 2020;110(3):175-176. DOI:10.7196/SAMJ.2020.v110i3.14450

Article History

Date submitted: 2020-02-26
Date published: 2020-02-26

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